RESOURCES

WHAT IS AUTISM?

Website: https://www.autismspeaks.org/what-autism

AUTISM STATISTICS AND FACTS

Website: https://www.autismspeaks.org/autism-statistics-asd

CENTER FOR AUTISM RESEARCH - AUTISM ROADMAP

Website: https://www.research.chop.edu/car-autism-roadmap 

The CAR Autism Roadmap, developed by the Children’s Hospital of Philadelphia (CHOP), provides an interactive guide for parents and families of individuals with autism. The roadmap offers information and resources for children, youth, and adults, and provides the latest information on treatments and therapies as well as how to get services.  Users can answer a few quick questions to be guided to the most helpful information, or choose to go directly to the timelines where they can access information about:

• Diagnosis
• Home and family
• Public safety
• Employment
• Community support
• Healthcare and treatment
• Government and legal
• Education
  

ASERT (AUTISM SERVICES, EDUCATION, RESOURCES AND TRAINING COLLABORATIVE)

Website: https://paautism.org 

The mission of the ASERT Collaborative is to enhance the lives of Pennsylvanians living with autism, of all ages and abilities, by improving regional access to quality services and interventions, providing information and support to families, training professionals in best practices and facilitating collaboration among providers of services throughout the Commonwealth.

PENNSYLVANIA AUTISM CENSUS

Website: https://paautism.org/resource/autism-census-2014/

The number of individuals with autism spectrum disorder in Pennsylvania has grown rapidly in the past decade and is expected to continue to grow in the coming years.  The 2014 Pennsylvania Autism Census Update was an effort of the ASERT funded by the Bureau of Autism Services within the Pennsylvania Department of Public Welfare. 

AUTISM SPEAKS

Website: https://www.autismspeaks.org

Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families -- through advocacy and support; increasing understanding and acceptance of people with autism; and advancing research into causes and better interventions for autism spectrum disorder and related conditions. 

EARLY INTERVENTION SERVICES (AGE 0-5) IN PENNSYLVANIA

Website: https://www.dhs.pa.gov/Services/Children/Pages/Early-Intervention-Services.aspx

Resources for Families

A FAMILY'S INTRODUCTION TO EARLY INTERVENTION IN PENNSYLVANIA

Website: https://www.pattan.net 

2011/2018 PENNSYLVANIA AUTISM NEEDS ASSESSMENT REPORTS

Website: https://needs.paautism.org/reports/ 

More than 8,000 autistic individuals and their caregivers completed the 2018 PA Autism Needs Assessment. The assessment lets us learn about the needs and experiences of people on the autism spectrum and their families/caregivers. The information collected from the survey is intended for service providers, community organizations and leaders, and advocacy groups to better understand and address the needs of individuals on the spectrum in Pennsylvania.

ABA IN PA INITIATIVE

Website: http://www.abainpa.com 

The ABA in PA Initiative is a 501 (c)(3) nonprofit advocacy organization made up of parents, industry professionals, and lawmakers dedicated to change the future for all children in Pennsylvania with Autism Spectrum Disorder (ASD) by ensuring access to Applied Behavior Analysis (ABA) therapy via Medical Assistance. See News, resources, and legislation in Pennsylvania to address the service gap for ABA. 

PENNSYLVANIA DEPT OF HUMAN SERVICES / AUTISM

If you are having a problem getting Applied Behavioral Analysis (ABA) for your child  that you have not been able to resolve with your Behavioral Health Managed Care Organization or the county, you may contact OMHSAS at (717) 772-7646 or RA-PWIBHS@pa.gov

Pennsylvania’s Intensive Behavioral Health Services (IBHS) Summary video by Magellan Health of PA, a Behavioral Health Managed Care Organization (BHMCO)